Saturday, July 27, 2013
The Week in Review
Monday was Zack's middle school orientation...that day parents went too. Tuesday was 6th grade orientation- just for the students! Monday was cool and fun. And a bit emotional and sentimental. How did I have a middle schooler? Already?! His teachers are amazing (I requested this team of teachers) and a lot of his good friends are in there too. Plus a bunch of my friend's daughters. In fact, his locker is surrounded by these cute girls! No worries at this point, though....he said to me, "why does my locker have to be by all of those girls? Why couldn't I have my locker be my this boy, or this boy, or that boy?" Lol, we're safe on the girl front....for now!
Z and I only got in one minor tiff at orientation....he has a real locker with a combination lock on it....he is left-handed, and kept turning it left first. Lol, how many of you remember it's right, left and then right again?! He didn't want to listen to ol' mom, who has been there, done that with the lockers and combo locks a million times. Oy! Anyways, so on Tuesday I asked him if he went and found his locker and practiced his combo again. His response? "No, I couldn't remember where my locker was!" Oh dear, it's gonna be a long year!
And I snuck in a wonderful pedicure on Tuesday.
Wednesday Jacob had his follow-up derm appt for his weird skin rash. Now it looks like his rash is actually this pretty rare thing...called pityr.iasis rub.ra pilar.is. Google image it- you'll get to see what my poor son is dealing with. :( He has been seeing a general dermatologist in my small town. I decided to take him to see the peds dermatologist down in Phoenix. He is thee guru of peds derm- I'm so excited I got an appt for Jacob on August 15th with him! I thought it would be like January before they could get him in. I met this doctor in my internship...when I was doing my inpatient peds rotation- he consulted on this baby girl with a skin condition...he knew what it was right away. I just want him to see Jacob at least once to absolutely make sure this is what he has. The dermato.pathologist read the skin biopsy as "psoria-form"....not straight up psori.asis. So I started thinking it wasn't psor.iasis. Anyways, I'll keep you posted.
Then my 5 year old went to his friend's house for a playdate with a couple other friends from their preschool. So cute! And my middle son ended up getting invited to stay for the playdate too!
Zack went to a birthday party sleepover on Wed-Thurs. Then on Thursday I got to take him to the doctor to get his 11 year old immunizations for school. Not fun at all. My baby girl didn't even cry the last time I took her to get immunizations! Anyways, on Monday I'm going to take a copy of his shot record book to school and then I'm gonna have him find his locker and open the lock. I don't want any surprises on the first day of middle school!
Friday I took the kids to a playdate with a bunch of my friends and their kids. Zack went to another birthday party last night.
Today D is taking my oldest two sons plus my parents to the Diamond.backs game. That team has been on fire lately! They won 10-0 last night!
And in the afternoons this week, my kids have been going to this fun class at the local community college- they do these college for kids classes in the summer- so fun!
My week- does it sound exhausting to you? This is my life, every single week! There was more stuff to occupy my time, too. These were just the highlights!
One more week of summer vacation left, and my kids start school on August 5th. I will have a 6th grader, 3rd grader, and a kindergartener. Amazing! It will just be Cami and me during the days all week.
Oh- I almost forgot...the update on D's sister in law. Since she deleted me on FB and D is never on FB, we don't get a lot of updates, and not in a timely fashion. My BFF told me the SIL posted a pic from the hospital.... she had another brain surgery. His brother texted my hubby yesterday (yes- texted, not even worthy of a phone call!) about the surgery...acting as if we knew she was even having surgery! What the?!?! Ummm sorry buddy, I think you skipped a few steps. The surgery went well, and they're just waiting on the pathology results.
OK moving on to other topics....I get to go away in August for 2 different girls' weekend getaways down to resorts in Scotts.dale! YAY! Much needed after the back-to-school frenzy. And another friend is having a 40th bday celebration up here on one of those weekends that I have to miss cuz I'll be at the girls' weekend getaway! Bummer!
I swear that Cambria now says "this" and "that"! So cute! More like "dis" and "dat", but whatever! I sent in the form to get her amended birth certificate this week. And then I can order her a social security card. And then everything will be all done with regards to the adoption. She turned 10 months this week. What a wonderful 10 months it has been having her in our family. We are all absolutely so smitten and so in love with her. :)
Z and I only got in one minor tiff at orientation....he has a real locker with a combination lock on it....he is left-handed, and kept turning it left first. Lol, how many of you remember it's right, left and then right again?! He didn't want to listen to ol' mom, who has been there, done that with the lockers and combo locks a million times. Oy! Anyways, so on Tuesday I asked him if he went and found his locker and practiced his combo again. His response? "No, I couldn't remember where my locker was!" Oh dear, it's gonna be a long year!
And I snuck in a wonderful pedicure on Tuesday.
Wednesday Jacob had his follow-up derm appt for his weird skin rash. Now it looks like his rash is actually this pretty rare thing...called pityr.iasis rub.ra pilar.is. Google image it- you'll get to see what my poor son is dealing with. :( He has been seeing a general dermatologist in my small town. I decided to take him to see the peds dermatologist down in Phoenix. He is thee guru of peds derm- I'm so excited I got an appt for Jacob on August 15th with him! I thought it would be like January before they could get him in. I met this doctor in my internship...when I was doing my inpatient peds rotation- he consulted on this baby girl with a skin condition...he knew what it was right away. I just want him to see Jacob at least once to absolutely make sure this is what he has. The dermato.pathologist read the skin biopsy as "psoria-form"....not straight up psori.asis. So I started thinking it wasn't psor.iasis. Anyways, I'll keep you posted.
Then my 5 year old went to his friend's house for a playdate with a couple other friends from their preschool. So cute! And my middle son ended up getting invited to stay for the playdate too!
Zack went to a birthday party sleepover on Wed-Thurs. Then on Thursday I got to take him to the doctor to get his 11 year old immunizations for school. Not fun at all. My baby girl didn't even cry the last time I took her to get immunizations! Anyways, on Monday I'm going to take a copy of his shot record book to school and then I'm gonna have him find his locker and open the lock. I don't want any surprises on the first day of middle school!
Friday I took the kids to a playdate with a bunch of my friends and their kids. Zack went to another birthday party last night.
Today D is taking my oldest two sons plus my parents to the Diamond.backs game. That team has been on fire lately! They won 10-0 last night!
And in the afternoons this week, my kids have been going to this fun class at the local community college- they do these college for kids classes in the summer- so fun!
My week- does it sound exhausting to you? This is my life, every single week! There was more stuff to occupy my time, too. These were just the highlights!
One more week of summer vacation left, and my kids start school on August 5th. I will have a 6th grader, 3rd grader, and a kindergartener. Amazing! It will just be Cami and me during the days all week.
Oh- I almost forgot...the update on D's sister in law. Since she deleted me on FB and D is never on FB, we don't get a lot of updates, and not in a timely fashion. My BFF told me the SIL posted a pic from the hospital.... she had another brain surgery. His brother texted my hubby yesterday (yes- texted, not even worthy of a phone call!) about the surgery...acting as if we knew she was even having surgery! What the?!?! Ummm sorry buddy, I think you skipped a few steps. The surgery went well, and they're just waiting on the pathology results.
OK moving on to other topics....I get to go away in August for 2 different girls' weekend getaways down to resorts in Scotts.dale! YAY! Much needed after the back-to-school frenzy. And another friend is having a 40th bday celebration up here on one of those weekends that I have to miss cuz I'll be at the girls' weekend getaway! Bummer!
I swear that Cambria now says "this" and "that"! So cute! More like "dis" and "dat", but whatever! I sent in the form to get her amended birth certificate this week. And then I can order her a social security card. And then everything will be all done with regards to the adoption. She turned 10 months this week. What a wonderful 10 months it has been having her in our family. We are all absolutely so smitten and so in love with her. :)
Sunday, July 21, 2013
Health Updates
We're back from Maui- back to reality and my real life. I woke up with a headache today...yep, that's my real life. UGH.
Jacob has his follow-up derm appt this Wednesday. But so far the results are most consistent with psoriasis. I'm happy it's not one of the other auto-immune diseases, but it still sucks for an 8 year old to have this. Psoriasis is an inflammatory condition, and there has been a lot of talk about inflammation and the damaging effects on the body. People with psoriasis have a higher incidence of heart disease. And lymphoma. :( I don't want the kids at school to make fun of him for the way his hands look. The elbows, knees and feet are easier to cover up, especially in the winter. Last night he was fighting me on putting on the cream, and I said I didn't want the kids to make fun of him. His response? "The kids won't make fun of me!" Gah, he's such a love bug and so sweet and would never imagine the other kids would make fun of him. Oy. He's pretty popular at school, has lots of friends and has not been subjected to cruelty by other kids yet. The sea salt tropical air and beach helped his skin out. His poor hands and feet looked so terrible and painful- red, cracking, peeling....ouch. 8 years old having to deal with this...probably forever.
In other news, I think my husband's sister-in-law's brain tumor (GB.M) is back. I don't know for sure, though because she deleted me from Facebook! She is, however, still FB friends with my BFF (nice, huh?!) and posted some cryptic post about receiving bad news, and I know she was recently at MD And.erson for a check-up. We are always the last to find out anything from them, they hardly ever call us or call us back, so I guess we'll wait to hear the news thru the grapevine. In May I had told her we had been distracted because of my ovarian mass, and I was scared that I had ovarian cancer with 4 little kids and that I was having surgery on May 30th. I figured as a cancer survivor, that she would understand my worries and situation. She never replied back to acknowledge that I was having a health scare and was having surgery, never checked on me and apparently never told my husband's brother that I was having surgery either. And if her cancer is back, she'll never have to answer the hard questions....why she treats me like shit....why she is a hypocrite....blah blah blah...because I would look like the bad guy then for putting her in the hot seat with these questions when she has cancer. Karma is a bitch. I'm not gonna mess with karma! I guess it doesn't really matter why she treats me the way she does. Right? It doesn't matter why she didn't acknowledge that I had a daugther for almost 3 months. It doesn't matter why she deleted me from FB for not wishing her a happy birthday when she didn't wish me happy birthday 4 months earlier! It doesn't matter why she she didn't delete my husband from FB when he didn't wish her a happy birthday either. I've asked her the questions, and she didn't answer them. Oh well.
How many of you have ever had a so-called family member delete you on FB? It's so silly, really. When there are bigger things to worry about, like cancer.
Dave has been reading a lot on auto-immune disease and dietary changes. We are considering doing a version of the Paleo diet to see if it helps with Jacob's skin.
In an effort to get healthy again myself, I have made a few changes in my life. I recently signed up for the Disney.land Tink.erbell 1/2 marathon in January. Holy cannoli, what have I done?! haha! I am going to run it with my BFF from medical school. I have 6 months to train. I better get runnin'.
I have also signed up for a Cross.Fit class thru the local community college. Yep, that's right...this doctor is now a college student again! They have childcare there too. The instructor is my personal trainer, and a bunch of my friends did this class last year and they kept asking me to go too. I had sprained my ankle really badly, then Cambria arrived, then Dave had gall bladder surgery, then I had mono, then I had pneumonia, then I had a hysterectomy, then I had blah blah blah...you get the picture! So the time is now to do it. Class starts in a month. And she teaches a BO.SU class once a week that I've been to also. So between Cross.Fit, Bo.su, and running, I should be skinny again by January. Believe it or not, I used to be skinny and be 115 lbs before I moved to this town. Even after I had my first child, I was back down to 122.
I have a million things to do to play catch-up since I just got home from Maui. Oh, I almost forgot to mention...a few hours after I got home from Hawaii, my college roommate texted and said they were on their way to my town, her daughter was playing in a softball tournament at the fields 8 minutes from my house! No way! So I took a few hour nap, and made myself somewhat presentable, and went and met her at the game. It was so nice to see her and her family again, and I forgot how much I used to laugh when I was around her. I took the kids to the softball field yesterday, and she got to meet my kids. Fun times!
Tomorrow I take my first-born child to his middle school orientation. Again, holy cannoli! Middle school already! How did this happen? I have to take him this week for his 11-12 year old immunizations. Yeah, he's not too happy about that. While we were in Hawaii, his All-Star team went to state, and lost. :( So sad.
Joshie starts kindergarten in 2 weeks. I think I am more nervous than he is!
I am going to go feed Cambria her bottle and snuggle with her.
Jacob has his follow-up derm appt this Wednesday. But so far the results are most consistent with psoriasis. I'm happy it's not one of the other auto-immune diseases, but it still sucks for an 8 year old to have this. Psoriasis is an inflammatory condition, and there has been a lot of talk about inflammation and the damaging effects on the body. People with psoriasis have a higher incidence of heart disease. And lymphoma. :( I don't want the kids at school to make fun of him for the way his hands look. The elbows, knees and feet are easier to cover up, especially in the winter. Last night he was fighting me on putting on the cream, and I said I didn't want the kids to make fun of him. His response? "The kids won't make fun of me!" Gah, he's such a love bug and so sweet and would never imagine the other kids would make fun of him. Oy. He's pretty popular at school, has lots of friends and has not been subjected to cruelty by other kids yet. The sea salt tropical air and beach helped his skin out. His poor hands and feet looked so terrible and painful- red, cracking, peeling....ouch. 8 years old having to deal with this...probably forever.
In other news, I think my husband's sister-in-law's brain tumor (GB.M) is back. I don't know for sure, though because she deleted me from Facebook! She is, however, still FB friends with my BFF (nice, huh?!) and posted some cryptic post about receiving bad news, and I know she was recently at MD And.erson for a check-up. We are always the last to find out anything from them, they hardly ever call us or call us back, so I guess we'll wait to hear the news thru the grapevine. In May I had told her we had been distracted because of my ovarian mass, and I was scared that I had ovarian cancer with 4 little kids and that I was having surgery on May 30th. I figured as a cancer survivor, that she would understand my worries and situation. She never replied back to acknowledge that I was having a health scare and was having surgery, never checked on me and apparently never told my husband's brother that I was having surgery either. And if her cancer is back, she'll never have to answer the hard questions....why she treats me like shit....why she is a hypocrite....blah blah blah...because I would look like the bad guy then for putting her in the hot seat with these questions when she has cancer. Karma is a bitch. I'm not gonna mess with karma! I guess it doesn't really matter why she treats me the way she does. Right? It doesn't matter why she didn't acknowledge that I had a daugther for almost 3 months. It doesn't matter why she deleted me from FB for not wishing her a happy birthday when she didn't wish me happy birthday 4 months earlier! It doesn't matter why she she didn't delete my husband from FB when he didn't wish her a happy birthday either. I've asked her the questions, and she didn't answer them. Oh well.
How many of you have ever had a so-called family member delete you on FB? It's so silly, really. When there are bigger things to worry about, like cancer.
Dave has been reading a lot on auto-immune disease and dietary changes. We are considering doing a version of the Paleo diet to see if it helps with Jacob's skin.
In an effort to get healthy again myself, I have made a few changes in my life. I recently signed up for the Disney.land Tink.erbell 1/2 marathon in January. Holy cannoli, what have I done?! haha! I am going to run it with my BFF from medical school. I have 6 months to train. I better get runnin'.
I have also signed up for a Cross.Fit class thru the local community college. Yep, that's right...this doctor is now a college student again! They have childcare there too. The instructor is my personal trainer, and a bunch of my friends did this class last year and they kept asking me to go too. I had sprained my ankle really badly, then Cambria arrived, then Dave had gall bladder surgery, then I had mono, then I had pneumonia, then I had a hysterectomy, then I had blah blah blah...you get the picture! So the time is now to do it. Class starts in a month. And she teaches a BO.SU class once a week that I've been to also. So between Cross.Fit, Bo.su, and running, I should be skinny again by January. Believe it or not, I used to be skinny and be 115 lbs before I moved to this town. Even after I had my first child, I was back down to 122.
I have a million things to do to play catch-up since I just got home from Maui. Oh, I almost forgot to mention...a few hours after I got home from Hawaii, my college roommate texted and said they were on their way to my town, her daughter was playing in a softball tournament at the fields 8 minutes from my house! No way! So I took a few hour nap, and made myself somewhat presentable, and went and met her at the game. It was so nice to see her and her family again, and I forgot how much I used to laugh when I was around her. I took the kids to the softball field yesterday, and she got to meet my kids. Fun times!
Tomorrow I take my first-born child to his middle school orientation. Again, holy cannoli! Middle school already! How did this happen? I have to take him this week for his 11-12 year old immunizations. Yeah, he's not too happy about that. While we were in Hawaii, his All-Star team went to state, and lost. :( So sad.
Joshie starts kindergarten in 2 weeks. I think I am more nervous than he is!
I am going to go feed Cambria her bottle and snuggle with her.
Saturday, July 13, 2013
Jacob update
I got a quick message from the dermatologist yesterday. Jacob's biopsy and labs are not consistent with dermatomyositis or lupus. Whew! I didn't suspect lupus, but it was good to be complete. Lupus is more common in females. OK so this begs the question- what the hell is causing this weird rash? And his poor hands and feet are dry, peeling and cracked. Ouch. The redness is improving, tho. I am constantly chasing him around with steroid creams and Eucerin cream and Aquaphor. And guess what? He runs the other way. Sigh.... He's 8- what do you expect, right? Interesting that the insides of the cream tubes don't have any rashes! HA!
We're having fun in Hawaii, despite Jacob's derm issues. Cambria is napping now, so I have a few minutes to blog. Dave took the boys swimming with our friends that are here also. This is our 3rd time coming to Maui at the same time as them!
Cami is crawling forward more now- my big girl! Regular crawling and army crawling. She waves. She imitates some noises I make. So cute! We went to the luau last night. She actually fell asleep at the end- even with the loud drums in the background!
Jacob and Zachary and Dave went surfing the other day- they did great for their first surfing lesson! :)
That's all for now....
We're having fun in Hawaii, despite Jacob's derm issues. Cambria is napping now, so I have a few minutes to blog. Dave took the boys swimming with our friends that are here also. This is our 3rd time coming to Maui at the same time as them!
Cami is crawling forward more now- my big girl! Regular crawling and army crawling. She waves. She imitates some noises I make. So cute! We went to the luau last night. She actually fell asleep at the end- even with the loud drums in the background!
Jacob and Zachary and Dave went surfing the other day- they did great for their first surfing lesson! :)
That's all for now....
Tuesday, July 9, 2013
Crazy Train
Jacob had to have a skin biopsy of this weird rash and he had 7 tubes of blood drawn last week. We are still waiting on the results. The red rash was also over his knuckles, and this other medical condition called dermato.myositis was in the differential diagnosis. He
was bawling in the office during the biopsy, and so was I. Dermato.myositis can be fatal, or leave a person wheelchair-bound.
Can you say holy crapola? I was a wreck for days.
And also....have you seen the news coverage about the 19 fallen firefighters? Yeah, they would be from my town. I've seen a bunch of pictures on FB of the funeral procession bringing them back to town from the medical examiner's office in Phoenix. Such an image.
Sucks big time.
Life feels like such a crazy train lately. Sigh...
was bawling in the office during the biopsy, and so was I. Dermato.myositis can be fatal, or leave a person wheelchair-bound.
Can you say holy crapola? I was a wreck for days.
And also....have you seen the news coverage about the 19 fallen firefighters? Yeah, they would be from my town. I've seen a bunch of pictures on FB of the funeral procession bringing them back to town from the medical examiner's office in Phoenix. Such an image.
Sucks big time.
Life feels like such a crazy train lately. Sigh...
Monday, July 1, 2013
Head Spinning
I really don't feel like blogging. Gosh, 1-2 years ago, you couldn't shut me up on my private adoption blog. Lately I've been like "Meh. Blog or do other things...hmmm.....do other things."
I have been so busy. Crazier than usual, if that is even possible. We leave for Hawaii very soon, and I don't have any packing done. We are renewing our vows on the beach there. I'm excited for that.
Zachary's baseball schedule has my head spinning. He finished the regular Little League season (can I get a woot woot?!) and just when I was starting to relax and smile.....Ring Ring! Hi, your child has been nominated for the All Stars baseball team! Say what?!?! All Stars was 2 weeks of baseball practice every night except for Sundays in June, and then a week of tournaments starting June 22nd. Guess what? His All Star team WON! Yes, they won the district championships in our district in Arizona! Holy cow! I don't think they were expected to win! The team they played really made the boys work for the championship title, though. Tough games! So now they go to the state championship tournament down in Phoenix in a couple weeks. Guess who will be in Hawaii....Oy.
Then we had Cambria baptized and my BFF's and family were there and we had a little party.
Then we had Zack's 11th birthday party at the pool. Super fun.
Then Jacob started getting this weird rash on his elbows and knees and hands and feet. His hands and feet are red and swollen. Hard to bend his fingers, hurts to walk. I took him to the dermatologist who said psoriasis. Which I suspected. But then he said it might be juvenile psoriatic arthritis (think Phil Mickelson) and if he doesn't get better in a week, I will have to take him to the pediatric rheumatologist. Holy cow, I don't want my 8 year old son on steroids and taking those biologics like Enbrel or Humira at 8 years old. His palms and soles of his feet and knuckles are red and now the skin is peeling. I turned to my friend Google and am scared it might be dermatomyositis instead of psoriasis. I think dermatomyositis can be fatal in a few cases. His fingers hurt some days. It breaks my heart. I love that kid so much (I mean, I love all of my kids....you know what I mean.) and I am terrified that this is something bad. I take him back to the dermatologist tomorrow for a follow-up appt. He will probably need a skin biopsy. But then we leave for Hawaii soon. Do I take him to Hawaii with stitches in? And then he can't swim and get the stitches soaking wet. Poor kid.
I know, I know....some people would kill to have my problems....take my son to Hawaii with stitches in? Wah wah wah! Like the people in my small town that have been affected by this hideoous wild fire that killed 19 of our Ho.t Sho.t fire.fight.ers. I'm sure you've heard about it- it made the national news. Friends of my friends lost friends and family members who were part of the Ho.t Sho.ts fire.fight.ers team. So sad. My aunt and two cousins died in a fire when my grandmother's house burned down years ago. I feel their pain.
Wow, I am in a funk.
Let's see...what else can I over-share with you all? I don't live in the south, so I don't feel right saying y'all! ;)
Cambria is going to be a big sister! No, I'm not pregnant. I just had a hysterectomy 4 1/2 weeks ago! Zachary likes to tell people, "my mom can't have any more kids." I'm not sure why he tells people that?! And we aren't planning on adopting again. Cambria's birth mother is pregnant again. With her new boyfriend. She is planning on parenting her new baby.
Please pray for my son Jacob and hope that his skin issue and joint pains turn out not to be serious.
I was in the grocery store today standing in line-- in the 15 items or less line and this guy 2 people in front of me was yapping up a storm and arguing over the price of just about every one of his 15 items. I was so irritable and was ready to tell him to STFU and move along and let the rest of us check out. Jacob was bugging me about buying him every type of candy in the check-out line. Cami started fussing in her car seat carrier- she was done and wanted out while we were standing in this line. My head started spinning and my stomach was doing nervous flip flops and was in knots. I was having a panic attack. I was freaking out about Jacob and was so scared this skin issue might be something really serious. Dave called me when I was in line. I walked out to the parking lot and started bawling and hyperventilating in the parking lot of the grocery store. What a mess I was. He asked me, "where are you?!?!" Then I sat in my SUV and finished crying and talking to him. I think I read too many facebook pages of pediatric cancer patients. Now I worry that my kids have cancer too.
I haven't been sleeping well lately. (No surprise there, right?) Last night I had a nightmare. Let me give you the backstory--not a dream. I am supposed to run in the Tinkerbell half-marathon in January with my BFF Missy at Disneyland. I can't start running for another week and a half because of my surgery. OK now here is the nightmare part- I dreamt that I showed up to the race and was wearing white see-thru bike shorts and had these tight white jean shorts over the spandex bike shorts. So I'm at the race, and can't lift or bend my legs very well because I'm wearing these tight jean shorts! What the heck?! And then I realize I forgot to bring water and power bars or anything else to eat. How am I supposed to run 13 miles in these ridiculous shorts and with no water or food?!
Like I said, my head is spinning.
I can't wait to be chillin' on the beach in Maui with my loves.
I have been so busy. Crazier than usual, if that is even possible. We leave for Hawaii very soon, and I don't have any packing done. We are renewing our vows on the beach there. I'm excited for that.
Zachary's baseball schedule has my head spinning. He finished the regular Little League season (can I get a woot woot?!) and just when I was starting to relax and smile.....Ring Ring! Hi, your child has been nominated for the All Stars baseball team! Say what?!?! All Stars was 2 weeks of baseball practice every night except for Sundays in June, and then a week of tournaments starting June 22nd. Guess what? His All Star team WON! Yes, they won the district championships in our district in Arizona! Holy cow! I don't think they were expected to win! The team they played really made the boys work for the championship title, though. Tough games! So now they go to the state championship tournament down in Phoenix in a couple weeks. Guess who will be in Hawaii....Oy.
Then we had Cambria baptized and my BFF's and family were there and we had a little party.
Then we had Zack's 11th birthday party at the pool. Super fun.
Then Jacob started getting this weird rash on his elbows and knees and hands and feet. His hands and feet are red and swollen. Hard to bend his fingers, hurts to walk. I took him to the dermatologist who said psoriasis. Which I suspected. But then he said it might be juvenile psoriatic arthritis (think Phil Mickelson) and if he doesn't get better in a week, I will have to take him to the pediatric rheumatologist. Holy cow, I don't want my 8 year old son on steroids and taking those biologics like Enbrel or Humira at 8 years old. His palms and soles of his feet and knuckles are red and now the skin is peeling. I turned to my friend Google and am scared it might be dermatomyositis instead of psoriasis. I think dermatomyositis can be fatal in a few cases. His fingers hurt some days. It breaks my heart. I love that kid so much (I mean, I love all of my kids....you know what I mean.) and I am terrified that this is something bad. I take him back to the dermatologist tomorrow for a follow-up appt. He will probably need a skin biopsy. But then we leave for Hawaii soon. Do I take him to Hawaii with stitches in? And then he can't swim and get the stitches soaking wet. Poor kid.
I know, I know....some people would kill to have my problems....take my son to Hawaii with stitches in? Wah wah wah! Like the people in my small town that have been affected by this hideoous wild fire that killed 19 of our Ho.t Sho.t fire.fight.ers. I'm sure you've heard about it- it made the national news. Friends of my friends lost friends and family members who were part of the Ho.t Sho.ts fire.fight.ers team. So sad. My aunt and two cousins died in a fire when my grandmother's house burned down years ago. I feel their pain.
Wow, I am in a funk.
Let's see...what else can I over-share with you all? I don't live in the south, so I don't feel right saying y'all! ;)
Cambria is going to be a big sister! No, I'm not pregnant. I just had a hysterectomy 4 1/2 weeks ago! Zachary likes to tell people, "my mom can't have any more kids." I'm not sure why he tells people that?! And we aren't planning on adopting again. Cambria's birth mother is pregnant again. With her new boyfriend. She is planning on parenting her new baby.
Please pray for my son Jacob and hope that his skin issue and joint pains turn out not to be serious.
I was in the grocery store today standing in line-- in the 15 items or less line and this guy 2 people in front of me was yapping up a storm and arguing over the price of just about every one of his 15 items. I was so irritable and was ready to tell him to STFU and move along and let the rest of us check out. Jacob was bugging me about buying him every type of candy in the check-out line. Cami started fussing in her car seat carrier- she was done and wanted out while we were standing in this line. My head started spinning and my stomach was doing nervous flip flops and was in knots. I was having a panic attack. I was freaking out about Jacob and was so scared this skin issue might be something really serious. Dave called me when I was in line. I walked out to the parking lot and started bawling and hyperventilating in the parking lot of the grocery store. What a mess I was. He asked me, "where are you?!?!" Then I sat in my SUV and finished crying and talking to him. I think I read too many facebook pages of pediatric cancer patients. Now I worry that my kids have cancer too.
I haven't been sleeping well lately. (No surprise there, right?) Last night I had a nightmare. Let me give you the backstory--not a dream. I am supposed to run in the Tinkerbell half-marathon in January with my BFF Missy at Disneyland. I can't start running for another week and a half because of my surgery. OK now here is the nightmare part- I dreamt that I showed up to the race and was wearing white see-thru bike shorts and had these tight white jean shorts over the spandex bike shorts. So I'm at the race, and can't lift or bend my legs very well because I'm wearing these tight jean shorts! What the heck?! And then I realize I forgot to bring water and power bars or anything else to eat. How am I supposed to run 13 miles in these ridiculous shorts and with no water or food?!
Like I said, my head is spinning.
I can't wait to be chillin' on the beach in Maui with my loves.
Subscribe to:
Posts (Atom)